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FREAKS : The Devil Boy

Date Added
JUL 2003

It is difficult to imagine the depths of suffering to which a two year old child can sink.  Yet, when he was rescued by a group of nuns in 1876, it was the first time in his tortured little life that David Lopez had ever experienced expressions of love.


His home, in a village deep in the Peruvian rain forests, was a wooden cage through whose bars pitying adults would occasionally feed him morsels of food before turning away in horror.  His very survival depended on such irregular acts of charity from a native community to whom he was a living curse, or 'devil boy'; a human punishment meted out to them by some hidden, potent force.


The reason behind their cruel, superstitious imprisonment of an infant was simple, baby David was born without a face.  He had no mouth or upper jaw, no lips or nose.  And, as time went by, it appeared that his remaining features were being relentlessly eaten away.  Had he not been discovered by those travelling sisters of mercy, David Lopez - a random name with which he was later christened - would almost surely have faced a lonely, agonizing death.


Instead, he plays today with little boys of his own age, goes out shopping with his adoptive mother, absorbs, bright as a button, all that he is taught and enjoys a life a world away from the nightmare he once knew.  At the hands of a skilled and dedicated surgeon who is literally rebuilding his face, David has emerged from his ordeal into what is indeed a brave, new world.


The first glimmer of hope came when a social worker at the orphanage in the Peruvian capital of Lima where David was first taken remembered seeing a televised interview in which top Scottish surgeon Ian Jackson spoke of the enormous challenge of correcting facial deformities in children.


Cutting through a mountain of red tape, the orphanage managed to organise a passport for David to travel to Britain and a visa for him to stay in the country as long as he needed.  Two airline companies responded to an appeal by providing him with a free first-class flight.


Ian Jackson, whose wife Marjorie and their four children immediately agreed that David should live with them as a member of the family, offered to perform a planned series of delicate operations completely free of charge.  An appeal fund organised by church officials and local newspapers, to cover the cost of National Health Services facilities for David's treatment at Canniesburn Hospital, near Glasgow, raised more than £50,000.  Despite seemingly insurmountable difficulties, in little more than a year since he was found cowering in his prison cage, David Lopez was on the verge of being re-born.


To begin with, the prospect of surgery threw up alarming complications.  In an interview two years after he began work rebuilding David's face, Ian Jackson said: 'I asked myself if David knew whether he was being punished or helped because he was too young to realize what was going on.  He developed chest problems, so I had to suspend the surgery for quite a while. 


'Some day, David may curse me for not leaving him to his fate in the jungle, but I just hope I am giving him a chance, giving him a face that will be acceptable.  he will have to take it from there.  David will never be considered handsome, but surgery can give him a face that will allow him to lead a normal life.  He has the opportunity to develop and I think he will come out on top.  he is a bright, warm and intelligent little boy.


Initially, it was difficult to determine whether David's face had been mauled by animals or if he had been the victim of a horrendous disease.  In fact, his disfigurement was the result of a rare disease called Noma, a condition caused by malnutrition which usually eats away at the corners of a victim's mouth.  In David's case, the disease had become more rampant, relentlessly devouring his jaws, nose and upper lip.  When found, he was unable to talk and responded only to a few words of Spanish, the native tongue of the South American Indians.


With the trusting, innocent love of a child, David soon accepted Ian Jackson and his wife as 'mum and dad'.  A Spanish-speaking tutor was hired as he began to settle into what to him was the unknown world of the family.  But there was still the problem of the tiny girl at the play school, who refused to play with 'the boy with the funny face' and holidaymakers who took their children away from the beach when David arrived to build sandcastles.


Said Ian Jackson: 'Children are straightforward and honest when confronted with people who are disfigured.  They make a casual remark out of innocent curiosity but within five minutes they have forgotten about it and accept the person.  David knows he doesn't look like other children.  We have explained the matter to him and now he is so accustomed to being regarded as normal that he wonders why anyone bothers to remark on his face.'


On one occasion, the surgeon continued, David was in a sweet shop, and heard the shop keeper remark about his 'terrible face' to a customer.  'David stood behind the counter, put his thumbs up to his ears and started to waggle his fingers.  He regarded it as a huge joke.  To him, waggling his fingers and poking out his tongue is really pulling a terrible face.  He's a tough independent little kid.  David stands up for himself and really considers himself to be a member of our family.  We treat him just like we treat our own children.  When he is naughty, he gets spanked, just like my own son and daughters.  David accepts that as natural, and that's the way it should be.  He gets his fair share of cuddling, and he appreciates the fact that we don't hide him away.  When the whole family goes out shopping or on a picnic, he comes with us.  We have so forgotten about David's face that sometimes it takes a moment's thought to understand why strangers are staring at him.'


David has already undergone dozens of operations in which the tops of his ribs have been cut away and transplanted inside the fragile tissue of his face to form his upper mouth and nose.  And, in a series of intricate skin graft operations, tissue has been transferred to his face to cover his newly-built, man-made features.  One day, that gaping hole in the middle of his face will be gone forever.


Meanwhile, his home life too is being lovingly moulded.  Marjorie Jackson says: 'The family has taken David into its heart.  Everyone does if they take the trouble to get to know him.  When he first arrived, he couldn't, or didn't want to communicate at all.  David must have known from his earliest moments that he wasn't like other children.  Before we could win his trust he had to get over whatever had happened to him in the jungle.  Because of the damage to his face he couldn't attempt to speak, but we soon realised how quick and intelligent he was.  We had a worrying time when he first started school, but only one of the children reacted badly.


'He makes friends quickly among other children.  It is only grown-ups who present problems.  I get very angry when adults approach to tell me that I shouldn't allow him to be seen outside the house because he is so ugly.  They are the ugly ones.  They refuse to understand the needs of a boy like David.  He can be tough and boisterous and energetic at times.  When he gets together with our son Andrew the pair of them wrestle on the floor and play rough games of football in the backyard.


'But we don't wrap him in cotton wool.  All we try to do is make sure he doesn't get any bruises or cuts which will hold back the healing of his surgery.'


Surgery which is transforming the face of a dark-complexion, piercingly dark-eyed little boy from a jungle prisoner into a happy, affectionate fellow who can face the world with dignity, pride and a fiercely independent courage born from love.

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